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At Palms Physiotherapy & Allied Health, we offer comprehensive, multi-disciplinary care for individuals diagnosed with Edwards Syndrome (Trisomy 18). Our team of physiotherapists, occupational therapists, speech therapists, and exercise physiologists works together to provide personalized treatment plans aimed at managing symptoms and improving quality of life.
Severe developmental delays: Cognitive impairments and delays in reaching developmental milestones such as sitting, standing, or walking.
Physical abnormalities: These may include clenched fists with overlapping fingers, small head size, low-set ears, heart defects, and skeletal abnormalities.
Growth retardation: Children with Trisomy 18 may have low birth weight and experience slow growth after birth.
Feeding difficulties: Many individuals with Edwards Syndrome have difficulty feeding due to poor muscle tone and coordination.
Respiratory problems: Breathing difficulties, including apnea, are common and may require medical intervention.
Improving Muscle Strength and Tone: We design exercises to strengthen muscles and improve motor function in children and adults with Trisomy 18.
Range of Motion Exercises: These exercises help to improve flexibility, prevent contractures, and enhance movement in stiff or tight muscles.
Postural Support and Stability: Our team works to improve posture and stability through therapeutic exercises that enhance body alignment and balance.
Our occupational therapists provide support for individuals with Edwards Syndrome in performing everyday activities and developing functional skills. Key areas of focus include:
Fine Motor Skill Development: Strengthening hand-eye coordination and fine motor skills to support activities such as grasping, reaching, and self-care.
Adaptive Equipment: We recommend specialized tools and assistive devices that make daily activities more manageable and improve independence.
Sensory Integration Therapy: Helping individuals with Edwards Syndrome better process sensory information and regulate responses to their environment.
Speech and Language Development: Therapy designed to support communication, focusing on articulation and comprehension for individuals with speech delays.
Alternative Communication Methods: For those who are non-verbal or have severe communication difficulties, we introduce augmentative and alternative communication (AAC) systems.
Swallowing and Feeding Therapy: Addressing feeding difficulties is crucial, and our speech therapists offer techniques to help improve swallowing safety and efficiency.
Low-Impact Exercises: Exercises aimed at improving cardiovascular fitness, strength, and flexibility, while minimizing strain on the body.
Weight Management and Mobility Support: Customized programs to help individuals stay active, maintain a healthy weight, and support overall mobility.
Postural Exercises: Designed to improve posture and reduce muscle tightness or imbalances.
At Palms Physiotherapy & Allied Health, our experienced team is here to help children and adults manage their condition and improve their quality of life.
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Better Health Channel - Edwards Syndrome
https://www.betterhealth.vic.gov.au
A comprehensive resource for understanding Edwards Syndrome, including symptoms, treatments, and support services in Australia.
Genetic Alliance Australia - Edwards Syndrome
https://www.geneticalliance.org.au
Genetic Alliance Australia offers advocacy, support, and resources for individuals with genetic conditions, including Trisomy 18.
Trisomy 18 Foundation Australia
https://www.trisomy18.org.au
An Australian-based foundation providing education, resources, and support for families affected by Edwards Syndrome.
Rare Voices Australia - Edwards Syndrome
https://www.rarevoices.org.au
Rare Voices Australia is an advocacy organization supporting people with rare diseases, including Edwards Syndrome (Trisomy 18).
Head to this page to see the different conditions that we can help with, and get you the pain relief and function you deserve!
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